Long COVID Resource Guide: Tools Plus Insights from State and Territorial Initiatives
July 16, 2025
This resource offers key Long COVID resources, tools, and support networks for individuals, health care providers, and public health professionals. It encompasses essential resources and examples of successful state-led initiatives that illustrate best practices in community engagement and awareness.
What Is Long COVID?
Long COVID is defined as a chronic condition that occurs after SARS-CoV-2 infection and lasts for at least three months. It includes a wide range of symptoms or conditions that may improve, worsen, or be ongoing.
Who Is Affected?
Its lasting symptoms can impact physical and mental health, restrict work and caregiving, and create ongoing challenges for families and health care providers.
Federal Resources
These tools provide current clinical guidelines and useful information for health care professionals and the public:
- Long COVID Basics by CDC
- Healthcare Appointment Checklist for Long COVID by CDC
- Guidance on “Long COVID” as a Disability Under the ADA, Section 504, and Section 1557 by HHS
- Resources for People with Long COVID by Administration for Community Living
Health Care Provider Resources
Health care providers play a crucial role in identifying, managing, and supporting patients with Long COVID. These resources support care coordination, patient advocacy, and disability protections related to Long COVID:
- Clinical Guidance: Long COVID Point of Care Resource by American Academy of Family Physicians
- Advocacy and Resource Access for the Care of Patients with Long COVID by American Academy of Family Physicians
- Practical Guidance for Medical Professionals by Job Accommodation Network
- AAPM&R Multi-Disciplinary PASC Collaborative
- Free CME: Updates in Long-COVID Conditions by American Academy of Family Physicians
- Long-COVID Webinars: Institute for Learning, Education and Development by U.S. Department of Veterans Affairs
- RECOVER Research Review (R3) Seminar Series by NIH
- Long COVID and Fatiguing Illness Recovery Program ECHO by The University of New Mexico
- Schmidt Initiative for Long Covid
Resources for Individuals, Caregivers, and Advocates
These resources are designed to support individuals living with Long COVID and the caregivers and advocates who stand beside them:
- Long COVID: What You Need to Know by AAFP
- Long COVID and Behavioral Health Communication Toolkit by SAMHSA
- AHRQ Efforts To Address Long COVID by Agency for Healthcare Research and Quality
- RECOVER: Researching COVID to Enhance Recovery by NIH
- RECOVER-TLC Will Advance Long COVID Research by Foundation for the National Institutes of Health
- Directory of Long COVID Clinics by Long COVID Alliance
- Long COVID Kids
- Long COVID Alliance Resources
- A Misunderstood Disabling Chronic Illness: How You Can Support Loved Ones Living with Long COVID by the University of Colorado School of Medicine
- Infection-Associated Chronic Conditions Initiative
- Patient-Led Research Collaborative
- Long COVID Essentials by Long COVID Justice
Long COVID Programs Across Jurisdictions
Federal funding from NIH’s RECOVER Initiative and the Agency for Healthcare Research and Quality’s Long COVID grants, combined with state resources and additional grant programs, has helped establish Long COVID programs nationwide. These efforts, driven by targeted funding, have enhanced care and support for impacted individuals and communities.
Colorado
The Colorado Department of Public Health and Environment (CDPHE) is tackling the impacts of Long COVID with initiatives to enhance care, raise awareness, and support affected communities. CDPHE created the Colorado Long COVID Community of Practice to foster collaboration, share insights, guide care strategies, and boost public awareness through online platforms.
- Long COVID by CDPHE
- Colorado's Next Chapter: Our Roadmap to Moving Forward by CDPHE
Minnesota
Minnesota’s Department of Health (MDH) leads a statewide Long COVID program focused on research, care, and community support. The state provides specialized outreach through partnerships with the Mayo Clinic, Essentia Health, and local groups. MDH also established a Long COVID Guiding Council to ensure equitable community access.
- Long COVID: A Post-Viral Infection-Associated Chronic Condition by MDH
- Long COVID Guiding Council: Project Accomplishments to Date and Plan for Future Work by MDH
- Long COVID PSAs by MDH
- Workplace Accommodation Requests for Long COVID by MDH
- Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by MDH
- Long COVID Funding Opportunities by MDH
New York City
The New York City Department of Health and Mental Hygiene has prioritized raising awareness and engaging communities about Long COVID. Activities include multilingual training for community and faith-based organizations and a three-part campaign that shares personal stories from those living with Long COVID.
- COVID-19: Long COVID by NYC Health
- Long COVID Fact Sheet by NYC Health
- Dear Colleague Letter on Long COVID by NYC Health
- YouTube Series: Long COVID discussions with Acting NYC Health Commissioner Dr. Michelle Morse and actor, activist Matt McGorry
- Living with Long COVID: Matt McGorry's Story by NYC Health
- Facts vs Fiction: What is Long COVID? by NYC Health
- The Risks and Realities of Long COVID by NYC Health
If you have any questions, would like to suggest additional resources, or need to report broken links, please contact infectiousdisease@astho.org.