Empowered People
The National Prevention Strategy provides evidence-based Recommendations for Empowered People. Families are the primary providers of long-term care for older adults in the United States. The National Alliance for Caregivers reports more than 44 million individuals are considered informal caregivers, providing unpaid help to those who live in the community and have at least one limitation in their activities of daily living. The contributions of caregivers remain largely unrecognized in discussions of financing and costs of healthcare and long-term services and supports, while their efforts are a critical extension of our formal healthcare system.
These resources are intended to help state and territorial governments and their partners implement the Strategy to improve health outcomes for older adults.
World Alzheimer Report 2013 Journey of Caring: An Analysis of Long-Term Care for Dementia
Alzheimer's Disease International (ADI)
This report is themed around long-term care, and provides information for aiding all stakeholders in the long journey of dementia care. The report includes information on the cost and effectiveness of care and makes important recommendations that should be the fundamental drivers of long-term care policy in dementia.
Supporting Family Caregivers Through Title III of the OAA
Administration on Aging (AoA)
This brief presents findings from a national survey of the Older Americans Act (OAA) program participants, focused on the National Family Caregiver Support Program (NFCSP). The NFCSP provides caregivers with services and resources; training, education, counseling, and support groups; respite care; and supplemental goods and services.
Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework
Centers for Disease Control and Prevention (CDC)
The report presents key questions and methods to help program developers, planners, and evaluators use the RE-AIM Framework in their work on caregiving. Case examples are offered in which the framework is applied to a caregiver intervention program and a policy intervention; and additional resources to pursue the use of RE-AIM for caregiver supports programs and policies are recommended.
2012 National Study of Employers
Families and Work Institute
This study reports on the practices, policies, programs, and benefits provided by U.S. employers to address the changing needs of today's workforce in the workplace.
The MetLife Caregiving Cost Study: Productivity Losses to U.S. Business
The MetLife Mature Market Institute and National Alliance for Caregiving
This study was conducted to produce an estimate of the productivity losses to U.S. businesses arising from employees who must make workplace accommodations as an outcome of caregiving responsibilities. These include costs associated with replacing employees, absenteeism, crisis in care, workday interruptions, supervisory time, unpaid leave, and reducing hours from full- to part-time.
Best Practices in Workplace: Eldercare
National Alliance for Caregiving
This study identifies current trends and innovations in workplace policies and practices that support employees with eldercare responsibilities.
Caregiving in the U.S. 2009
National Alliance for Caregiving in collaboration with AARP
This study presents a portrait of family caregivers in 2009, and compares it to a portrait of caregivers in the past. It inquired about certain core elements of caregiving situations, while also exploring new areas.
Employer Resource Guide: Four Steps for Supporting Employees with Caregiving Responsibilities
ReACT (Respect A Caregiver's Time) in partnership with AARP and National Alliance for Caregiving
This resource guide assists front-line managers and human resources executives in taking action to support their employee caregivers. It provides an understanding for the first steps to take when helping support caregiving employees with tips for taking actions and links to relevant research and resources.
Easing the Burden of Caregiving: The Impact of Consumer Direction on Primary Informal Caregivers in Arkansas
U.S. Department of Health and Human Services
This study assesses the effect of consumer-directed care on the emotional, physical, and financial well-being of the primary caregivers of the Medicaid beneficiaries who voluntarily joined Arkansas's Cash and Counseling demonstration.
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In 2016, ASTHO launched a Caregivers Learning Community to support
states working with caregivers by providing them the opportunity to learn from
national experts and the experiences of their peers across the country
implementing similar programs. The learning community was aimed at equipping
the participating states with knowledge and resources to supporting caregivers
within the states. ASTHO conducted interviews with three of the participating states:
Kirsten Aird from Oregon, Jacquilyn German and Dr. Victor Sutton from Mississippi,
as well as Barbara Howe and Tracy Wohl from New Mexico to learn more about
their ongoing work with caregivers and how participation in the learning
community supported these efforts. Building up on statistics highlighted
earlier, the interviews were also aimed at gaining information that can be
shared with leadership at other agencies that are also planning to develop and
implement programs for caregivers.
ASTHOBrief: Caregiving for People Living With Dementia and How Health Departments Can Make an Impact
Association of State and Territorial Health Officials 2014 2231 Crystal Drive, Ste 450, Arlington, VA 202-371-9090 www.astho.org 1 Issue Brief Program and Policy Considerations for Supporting Caregivers Background The current growth in the number and proportion of older adults in the United States is unprecedented in
Association of State and Territorial Health Officials 2014 2231 Crystal Drive, Ste 450, Arlington, VA Visit ASTHO’s complete story archive at www.astho.org/stories State Story California: The Dementia Care Network Model: Enhancing Caregiving for Persons with Alzheimer’s and other Dementias in Culturally Diverse Groups
Association of State and Territorial Health Officials 2014 2231 Crystal Drive, Ste 450, Arlington, VA Visit ASTHO’s complete story archive at www.astho.org/stories State Story Georgia: Empowering Caregivers and Care Receivers with BRI Care Consultation The Atlanta Regional Commission, in collaboration with regional Ar
Association of State and Territorial Health Officials 2014 2231 Crystal Drive, Ste 450, Arlington, VA Visit ASTHO’s complete story archive at www.astho.org/stories State Story Maine: Improving Dementia Care through the Savvy Caregiver Program The Maine Department of Health and Human Services’ (DHHS) Office of Aging an
Association of State and Territorial Health Officials 2014 2231 Crystal Drive, Ste 450, Arlington, VA 202-371-9090 www.astho.org 1 Issue Brief Program and Policy Considerations for Supporting Caregivers Background The current growth in the number and proportion of older adults in the United States is unprecedented in
This COVID-19 resource outlines recommendations for families with children, including how to make a plan for what will happen if the caregiver or caregivers in the family become ill with COVID-19 and creating a circle of support.